Challenges and Triumphs

Psalm 106:1
Praise the LORD. Give thanks to the LORD, for he is good; his love endures forever.

Though we still had our share of challenging moments today, our day was also full of positives and little steps ahead. As for the challenges, she's still throwing up about twice a day and is also having some really painful abdominal pain. Of course, it's hard to watch her go through this. All I can do is hold her little hand and speak soothing words and pray her through it. Also, she had to have the dressing on her picc line changed today which is quite painful and scary for her.

And then, just so we could fill our drama quota for today, a man showed up at our door telling us that he needed to take Willow Grace downstairs for an x-ray because the perennial catheter in her stomach was leaking. Well, that was news to me! After what happened a few days ago, we've decided to question just about everything. The man wanted us to help him wheel her down to x-ray with everything, all her little machines, in tow. I protested and explained that she is hooked up to the dialysis machine 24 hours a day, and that machine cannot be moved. He was insistent, and Chris told him to go check again. We called the nurse and asked her to double check as well. It turns out that he had received the wrong orders. The doctor had mistakenly written down Willow Grace's name for the x-ray when it was another little girl who had the leaking catheter! I'm so glad we aren't accepting the word of every person who shows up at our door in a set of scrubs.

And now on to the positives!

First, I finally heard her laugh after not hearing it for two weeks! At 2:30 AM, she was awake and playing with her Nana (my mom) She was blowing through a Santa Claus straw which was making little whistling noises. It was cracking her up! I actually fell back to sleep listening to that sweet little tinkling noise! Also, Willow Grace was hungry today. She woke up asking for Fritos! I'm not even sure why she asked for those as she's only had them a couple times before in her life. It's not really the kind of thing she's allowed to eat just yet in the hospital, so I convinced her instead to try a roll, of which she ate half! Great progress after not eating for two weeks! Another highlight was the two hours she was allowed to be off of the dialysis today. While she still wasn't cleared to leave the room, not having tested negative for the e. coli as of yet, we were still able to get her out of bed and move around with her. And my little princess felt like singing today! Normally, she's so vibrant and loves to sing and dance. We caught a little glimpse of that little drama queen today. Check out the video below of her singing with me while her Gran-Gran (Chris's mom) holds her. (Sorry that my voice is so loud)